Inside Health – NHS data

NHS Digital https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research

Polls on citizen views
https://www.healthwatch.co.uk/news/2021-07-20/patient-data-crucial-planning-health-services-and-so-building-trust-how-nhs-uses-it
and
https://www.healthwatch.co.uk/news/2018-05-17/how-do-people-feel-about-their-data-being-shared-nhs

Manchester Uni citizens jury

Click to access New%2012621_NIHR_Juries_Report_WEB.pdf

Other ways of doing things
OpenSafely https://www.opensafely.org/

SPIRE scotland
https://spire.scot/

Wellcome excellent resource
https://understandingpatientdata.org.uk/news/trustworthy-use-gp-data-what-must-happen-now

Caldicott review
https://www.gov.uk/government/publications/review-of-data-security-consent-and-opt-outs

caution on pseudo nmyised data
https://techscience.org/a/2018100901/

Good briefing from Med Confidential

Major health data breaches and scandals

not forgetting google deep mind

Royal Free and Google DeepMind trial did not comply with DPA

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