2 Responses to “Lancet – informed women choose breast screening less often”

  1. Louise February 19, 2015 at 11:24 am #

    I have been chased by the NHS screening program. I declined to participate and husband emailed refusal of appointment. The response by a complete stranger to telephone me was intrusive and annoying.
    Three years ago I had a similar experience. We cancelled two appointments ( they tried to deny receipt) until we produced email evidence.
    They threaten to remove you from your GP practice if you fail to respond to their pestering.
    Invitation is a strange word. I would call it very aggresssive marketing and a decidely – we know best.
    I had a private mammogram two months previously and informed them – the response was ‘ you can have another one’
    Duh – no way am I going to be included in this disgraceful bullying.
    Louise

  2. Emmi Dack March 10, 2015 at 12:07 am #

    I cancelled my first NHS breast screening, but was very glad that I was persuaded to make another appointment because DCIS was picked up – I realise the issues connected with over-treatment for this. I had a lumpectomy and high-grade DCIS was found throughout my breast along with a small grade 3 Her2+ tumour. I then had a mastectomy. I was told that had I not attended that appointment, I would probably not have been alive to attend the next one. A few years later, after being diagnosed with pre-cancer of the uterus and a multi-nodular goitre, I was given a clinical diagnosis of Cowden’s syndrome. I now have annual mammograms as Cowden’s confers an 85% lifetime breast cancer risk. My radiology consultant reminds me everytime to do regular breast exams between mammograms. I see from a post elsewhere that you feel it: ‘unfair to tell women that regular self-examination will save their lives when it may simply incur anxiety and have the potential to harm,”. What do you suggest that women do? How do you suggest women with very high risk of breast cancer navigate that risk if prophylactic surgery is not an option? If you are ever at a loss for an article, I suggest looking at the lack of knowledge about the visible skin and mucous membrane signs of Cowden. I had visible signs of Cowden’s on my hands and feet twenty years before having breast cancer. I have met many doctors who treat the cancers found in those with Cowden’s (breast cancer – 85.2% lifetime risk in women, epithelial thyroid cancer – 35.2% LTR which starts at birth, renal cancer – 33.6% LTR, endometrial cancer – 30% LTR at age 60, colorectal cancer – 9% and melanoma – 6%) who have never heard of Cowden’s. The common excuse for not knowing about the syndrome is that it’s so rare that they are likely to see a case in their lifetime. The incidence is given as 1 in 200,000 affected. Professor Charis Eng of the Cleveland Clinic, Ohio considers that it is considerably underdiagnosed because the mucocutaneous signs are missed. She once commented to an audience of 5,000 breast cancer surgeons that in her opinion there were probably 2 or 3 people in the audience with Cowden’s. PTEN Hamartoma Tumor Syndrome (PHTS). You may be interested in the links below. Kind regards.

    http://www.ncbi.nlm.nih.gov/books/NBK1488/. http://www.thefreelibrary.com/Cowden+syndrome+more+common+than+suspected%3A+linked+to+breast+cancer…-a0100401374.http://beatingcowdens.com/tag/cowden-syndrome/page/2/ https://twitter.com/Emmi_Dack

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